Emma Goes To School
When my oldest son started Kindergarten, I felt overwhelmingly anxious. Would he like his teacher? Would he make friends? Would people be nice and helpful toward him? All of these questions crossed my mind.
I have had an awesome opportunity to collaborate with the kickstarter campaign for Emma Goes To School.
Emma Goes to School is a children’s book that promotes awareness and celebrates physical and neurodiversity, about a little girl from Monstoria who’s worried about fitting in.
I have reviewed this campaign and let me start by saying it’s amazing! I definitely recommend you check it out to learn more. Kristen the author decided to write the book when Emma was born. Her goal was to promote awareness and celebrate physical and neurodiversity, about a little girl from Monstoria who’s worried about fitting in.
Emma suffers from Schaaf-Yang syndrome (SYS) It’s a genetic disorder caused by a disruption of the MAGEL2 gene on chromosome 15. The disrupted gene causing Schaaf-Yang syndrome is also missing in another, more common genetic disorder, Prader-Willi syndrome (PWS). PWS is caused when MAGEL2 and several additional genes on chromosome 15 are missing or inactivated.
Schaaf-Yang syndrome shares many clinical features with Prader-Willi syndrome. Those include hypotonia, feeding difficulties during infancy, global developmental delay/intellectual disability, and sleep apnea. However, patients with Schaaf-Yang syndrome have a relatively higher prevalence of autism spectrum disorder, and almost all of them manifest joint contractures, typically affecting the finger joints, but in more severe cases also involving knees and elbows.”
you can find more information on the subject by clicking here.
As parents we are worried about our kids fitting in, because let’s face it kids can be cruel (And so can some adults). But as a parent with a child who has special needs, the worry is even higher. This book shows us how to support and encourage our child to be OK with who they are. It’s also a great book to show others the importance of compassion and understanding.
If you’d like to learn more about this book and their campaign, you can click here to check it out.
You can also follow the journey on all their social media outlets.
I am honored to be apart of this and look forward to reading the book to my own children.